We’re not Superman
Okay, let me say this I am not a fan of Hospice this weekend has been a nightmare and frankly they need to learn what a good bed side manner is! I am very angry right now. Today I had to do everything in my power not to get angry and then show it towards the Hospice people. I had to leave the room to calm dad down.
They had asked for a family meeting at noon today, we did it, we encouraged dad to come because he needs to be involved in the process. They had asked if there are any concerns and dad said he had one. He had a problem with no one telling him that they had taken mom to the hospital. No one bother giving him any information, no note lift or nothing. He had brought up that when they came in they had criticized how the house looked, and the dog sometimes going potty on the floor. Okay it’s not good, but how hard is it to bend over and pick up the dog poop. But to make commits like their house is a pig pin and or that they can’t go to other people houses with out washing their clothes first is not okay. Mom has terminal cancer, dad is 86 years old and has a hard time walking around. He can’t be home 24/7 no one could handle that, yes mom needs someone there but it can’t just be on one person..
Dad was very angry that they had taken mom and no information was lift about anything, so when he came back she was gone.
I am not disagreeing with them feeling the need to remove mom out of the home, I think they did the right thing. Now the way they treated the family. I feel they really missed the mark. Mom is at Austin hospital here in Minnesota, this is a 2 hour drive for my husband and I. we ended up having to stay in a hotel, I don’t even want to think about how much school work I have lift to do. I know I gotta get it done but I am just drained. They were very harsh with dad, and I spoke up for him. I said he is a 86 year old man he can’t do it all on his own. I thought you guys were to have people who could come in to relieve him for a while during the day. They pretty much said, we are not here for him. I am concern with how they have treated my family in general.
Dad had gotten very upset and decided he would leave because he didn’t want them to have security remove him. I honestly do not think they would have. Dad has had some people blame him for mom cancer, and being in the hospital, mom wanted her dog to go to another family member, and Hospice was just really rude and not compassionate to him. I told Dad I would go with him, and walk him downstairs. Mom got upset to, and told dad Don’t you have a heart attack on me, so you die before me. That upset me because she was becoming upset, I told her, Mom don’t worry I will take care of dad and won’t leave him until he is okay. We got down stairs and out to the door area, and dad started losing it. He told me, he didn’t know what he was going to do. I told him it would be okay, and we’d get through it. I told him it wasn’t his fault, he did the best he could. I told him not to let people place the guilt on him, and that they were hurting and he was a easy person to blame. They just need someone to blame but it not his fault. I told him several times you did your best and that all anyone can ask of you.
It took a while, and I was at a lost as to help dad, shoot he been married over 55 years. I am 31 years old, and just been married for 2 years, how am I going to even be able to grasp how he feels. I told him he was important to Craig and I and we needed him still. He told me, they took everything from me first my wife and now my dog. Dad never had shown any real interest in the dog, we didn’t know, but when he told me they was taking everything away from him. I told him if he wanted the dog he could have her. Even before telling mom this, I just felt he needed the dog, because he will feel losing that dog is going to be like losing mom all over again. I do not want to see dad go through that. When I went back up I told mom, and she said I didn’t know and she felt bad and said he better have the dog. I told her not to worry about it, because I already told Dad the dog was his.
While talking to dad one of the helpers came up from the Hospital, and asked dad if he was okay and if we needed some grief counciling I said that I think it be good for dad but he keeps saying no. She spoke with him for a while and got him to agree. With me dad admit he needed help because he was lost and didn’t know what to do. We went back in to the hospital, and we found out their grief counselors are the hospice nurses. I said No, I will not have him speak again to hospice after they helped get him to this point. She said she tired to find someone who wasn’t in the meeting we lift. I told her it was not acceptable because they have no clue how to have a good bed side manner for the family members.
This family is hurting, yes we are all grieving in our own ways and some of us are at different places of our grief and angry. Dad is angry and sad, I couldn’t even begin to imagine how this is for him. She found out everyone that could help were the ones in the meeting. This was not doable for us. After what I saw in mom hospital room, why would I want to allow that? The lady finally suggested the hospital shrink, which is money out of our pockets. I told her that, and said the Hospice should not be the grief counselors because they are unable to listen with out judgment because they are there to care for mom well being and have clearly showed they don’t care about dad needs. How can you be impartial when your treating someone, it hard to keep your mouth shut when the person needs to vent their frustrations expecially when it something against your company or program.
Austin hospital, and any hospitals who have hospice playing two rules really should not do that, because when your feel attack your less likely to go or ask for help. What happened with dad, I told him when we got sick of the hospital options which would only upset him and then piss me off because I feel a strong need to be protective. I asked the lady for a piece of paper and told dad I was giving him my Grandma telephone number, and she would talk to him. Grandma several years ago lost her husband and I know she can understand dad plus she the same age group, same generation. We finally got a phone number from one of the nurses for grief support.
My husband and I have had just about the entire family leaning on us to be strong. I don’t mind his dad doing this to us, because he needs someone and has no one unless we are there. I love dad and shoot if he needed I’d give my heart to him. My husband and I were glad he called grandma right away, and lift her a message. I called her to let her know that dad would be calling her and I didn’t know what else to do to help him. Grandma spoke with dad, and talked to me about some of dads needs expecially with the dog. I will need to make sure dad keeps that little dog.
We had someone in the family tell me and my husband that one of us or dad should have to stay with mom until she dies, so that one of us are there because she scared. I got annoyed, with that person, I do not want dad or my husband having to watch her pass away in front of them. I told my husband if it gotta be one of us, I want it to be me. I feel a need to protect everyone around me. Most of the nurses and other staff workers saw this in me and told me if I needed help make sure we get it. I told her I would, but right now I have to make sure everyone else is okay. I will be fine.
Am I fine, as fine as I am going to be. I am very close to mom, not sure how she capture my heart the way she did, and it is hurting me deeply I can’t imagine how unbearable for my husband and dad and the rest of the family this must be.
Cancer is such a horrible thing, I really wish hospice wasn’t so horrible there because I really think dad could have used someone to talk to with training. My husband and I might have sought out help before we came home so we could unload a little bit, but we decided it wasn’t healthy idea. Why do I want to talk to hospice when we get to hear how it our fault our mom is going to die because we aren’t their enough. I know that not their exact word, but hell it feels like it. To be told your feelings are wrong is not okay, It not right, It’s our grief process and that okay!



