Comments on: We’re not Superman http://www.justpassmeby.com/2008/08/25/were-not-superman/ Don't honk, don't cut me off, just pass me by! Wed, 06 May 2009 16:53:03 +0000 hourly 1 http://wordpress.org/?v=3.0.1 By: admin http://www.justpassmeby.com/2008/08/25/were-not-superman/comment-page-1/#comment-184 admin Thu, 28 Aug 2008 02:25:53 +0000 http://www.justpassmeby.com/?p=237#comment-184 I spoke with Customer excellence at the hospital this morning. I was able to voice my concerns and opinions about what has happened with hospice. I feel better now that I was able to get it off my chest and know the hospital will deal with it. They will be sending Dad and I both a letter of the conversation. I really hope hospice will use this as a learning tool and not well make things harder on the family. I hope they learn from this so no family has to feel like mine did this weekend and since we have been dealing with them. I spoke with Customer excellence at the hospital this morning. I was able to voice my concerns and opinions about what has happened with hospice. I feel better now that I was able to get it off my chest and know the hospital will deal with it. They will be sending Dad and I both a letter of the conversation. I really hope hospice will use this as a learning tool and not well make things harder on the family. I hope they learn from this so no family has to feel like mine did this weekend and since we have been dealing with them.

]]> By: admin http://www.justpassmeby.com/2008/08/25/were-not-superman/comment-page-1/#comment-180 admin Tue, 26 Aug 2008 13:59:48 +0000 http://www.justpassmeby.com/?p=237#comment-180 Catmommy and Ms. Kat, Thank you. I honestly do not think we will try hospice again. I will be contacting a couple of local churchs and seeing if anyone is welling to vulneteer to help dad out. I am sorry I just don't want to take the chance of dad getting so upset with hospice he also has a heart attack. I don't think Craig or myself could deal with that. We contacted a local catholic church in his area and the priest or one of the nuns is supposed to go over there today and speak with dad. I think the Priest aught to be great, because he should be nuterual. We recieved no help and I even told hospice I just used my laptop money for college, and all of my college funds that I had saved up. They did not offer any help. I am not complaining about not having the laptop money now, yes I need that but mom and dad come first. Anyways, I believe eventually I will be able to get a laptop and the one I have right now will do for know, as long as I don't save anymore on to it. Speaking of that I should take all the files and move them to this computer would free up a bunch of space. The fact is Austin Hospice for the hospital was horrible, I have never felt so alone. Hell when my father died from cancer in Milwaukee WI, at the VA hospital when I had a meltdown it was okay. Their hopsice type people where great to me and my family. I was scared dad would kill his self yesterday, because of a couple of comments made, the hospital staff didn't notice or get it until I told dad "if I don't hear from you in 30 minutes I will come looking, if I can't find you I will call the police and put a search on you." After he lift they asked if there was a danger. Well golly did you not listen to anything that was said. I had over night to think on what happened yesterday, and I think i might call to speak to their customer service people for excellence. I wish hospice did what they was supposed to do. Sometimes it best not to say things, and just let the person vent that all dad needed, not to be made his feelings were wrong or unvalid. Catmommy and Ms. Kat,

Thank you. I honestly do not think we will try hospice again. I will be contacting a couple of local churchs and seeing if anyone is welling to vulneteer to help dad out.
I am sorry I just don’t want to take the chance of dad getting so upset with hospice he also has a heart attack. I don’t think Craig or myself could deal with that. We contacted a local catholic church in his area and the priest or one of the nuns is supposed to go over there today and speak with dad. I think the Priest aught to be great, because he should be nuterual.
We recieved no help and I even told hospice I just used my laptop money for college, and all of my college funds that I had saved up. They did not offer any help.
I am not complaining about not having the laptop money now, yes I need that but mom and dad come first. Anyways, I believe eventually I will be able to get a laptop and the one I have right now will do for know, as long as I don’t save anymore on to it. Speaking of that I should take all the files and move them to this computer would free up a bunch of space.
The fact is Austin Hospice for the hospital was horrible, I have never felt so alone. Hell when my father died from cancer in Milwaukee WI, at the VA hospital when I had a meltdown it was okay. Their hopsice type people where great to me and my family.
I was scared dad would kill his self yesterday, because of a couple of comments made, the hospital staff didn’t notice or get it until I told dad “if I don’t hear from you in 30 minutes I will come looking, if I can’t find you I will call the police and put a search on you.” After he lift they asked if there was a danger. Well golly did you not listen to anything that was said. I had over night to think on what happened yesterday, and I think i might call to speak to their customer service people for excellence.
I wish hospice did what they was supposed to do. Sometimes it best not to say things, and just let the person vent that all dad needed, not to be made his feelings were wrong or unvalid.

]]> By: Kat http://www.justpassmeby.com/2008/08/25/were-not-superman/comment-page-1/#comment-179 Kat Tue, 26 Aug 2008 04:42:12 +0000 http://www.justpassmeby.com/?p=237#comment-179 Gav, that is not at all how hospice is supposed to work. What hospice is supposed to do, is to be there for the entire family, not just the patient who is passing away. They are supposed to help each family member with grief counseling, with information, help them get any type of social programs that can help them pay for a home health aide, someone who can come in and help dad around the house if he needs it. To help the family members who have to travel any type of distance, get close and affordable hotel/motel rooms to stay in, and also help them find places that can help with meal vouchers so the cost of being in a town far away from home, isn't an even bigger burden that it already is. Hospice is supposed to know about all of the local social community programs that can offer all kinds of help from lodging for family members from out of town, help paying for meals and gas, help for the spouse at home if they are elderly like a home health nurses aide who will come in and make sure dad is taking his medications, eating properly, monitoring his blood pressure if he has heart problems. If he will be in the home alone and needs help keeping up the house, they should also know of local maid services who offer charity cleaning hours to hospice families in need. Seriously, I could go on and on about what hospice is supposed to do. If the hospice that works at the hospital is that bad, call around the town for another local hospice group, there should be more of them, not just that one associated with the hospital. Here is a listing of other hospices in the Austin Minnesota area for you to call and check in to. Scroll down the page for the listings, they say they have 73 different hospice listings. http://www.retirementcommunity.com/Category/Home-Care-and-Hospice-Care/Minnesota-Home-Care-and-Hospice-Care/ Kats last blog post..<a href="http://www.katjcooper.com/2008/08/next-week-will-be-a-busy-one.html" rel="nofollow">Next week will be a busy one.</a> Gav, that is not at all how hospice is supposed to work.
What hospice is supposed to do, is to be there for the entire family, not just the patient who is passing away.
They are supposed to help each family member with grief counseling, with information, help them get any type of social programs that can help them pay for a home health aide, someone who can come in and help dad around the house if he needs it. To help the family members who have to travel any type of distance, get close and affordable hotel/motel rooms to stay in, and also help them find places that can help with meal vouchers so the cost of being in a town far away from home, isn’t an even bigger burden that it already is.
Hospice is supposed to know about all of the local social community programs that can offer all kinds of help from lodging for family members from out of town, help paying for meals and gas, help for the spouse at home if they are elderly like a home health nurses aide who will come in and make sure dad is taking his medications, eating properly, monitoring his blood pressure if he has heart problems.
If he will be in the home alone and needs help keeping up the house, they should also know of local maid services who offer charity cleaning hours to hospice families in need.

Seriously, I could go on and on about what hospice is supposed to do.
If the hospice that works at the hospital is that bad, call around the town for another local hospice group, there should be more of them, not just that one associated with the hospital.

Here is a listing of other hospices in the Austin Minnesota area for you to call and check in to.
Scroll down the page for the listings, they say they have 73 different hospice listings.
http://www.retirementcommunity.com/Category/Home-Care-and-Hospice-Care/Minnesota-Home-Care-and-Hospice-Care/

Kats last blog post..Next week will be a busy one.

]]> By: Christine (aka catmommy9) http://www.justpassmeby.com/2008/08/25/were-not-superman/comment-page-1/#comment-178 Christine (aka catmommy9) Tue, 26 Aug 2008 04:11:39 +0000 http://www.justpassmeby.com/?p=237#comment-178 Oh, my goodness, how awful for you all. Hospice, and the medical profession in general, should be compassionate and sensitive not only to the patient, but to the patient's family as well. This sort of thing is totally unacceptable, and you guys have the right to be angry and upset. I truly hope that you can find all of the help you need, from someone who cares. You and your family are in my thoughts. Christine (aka catmommy9)s last blog post..<a href="http://www.ailurophile.com/stuph/index.php/site/comments/an-amazing-deal/" rel="nofollow">An amazing deal…</a> Oh, my goodness, how awful for you all. Hospice, and the medical profession in general, should be compassionate and sensitive not only to the patient, but to the patient’s family as well. This sort of thing is totally unacceptable, and you guys have the right to be angry and upset.

I truly hope that you can find all of the help you need, from someone who cares.

You and your family are in my thoughts.

Christine (aka catmommy9)s last blog post..An amazing deal…

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